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Life As I Know It

6-7 min read

Over the last couple of months, I have finally had the capacity to do some reflection on everything that has occurred over the last two years. I have been taking much needed time to heal and recover Physically, Intellectually, Emotionally, and Spiritually. What a journey it’s been. It’s brought up many feelings and lots of questions. Some of the things that stand out to me are pain, sadness, grief, resilience, forgiveness, serenity, gratitude, and joy. I don’t think I’ll be able to put it into words in a way that can give it justice. What I can do, is share with you pieces of the journey that might offer some clarity. The thing that comes to mind first is to share my most recent doctor’s appointment and some of the challenges I’m still having. Before even going into the doctor’s office, I pretty much begged the doctor’s medical team to have the doctor review my medical history before meeting with me, with the emphasis that I want to rebuild trust to continue my care. My anxiety about that appointment was through the roof, but my therapist had assigned this task as homework for me to do before our next session and I knew it needed to be done. I had reservations though. I didn’t want to be treated the way I had in the past. I wanted them to take my request seriously. I just wanted an opportunity to further my healing. I didn’t want to go in there with my dukes up, but my lived experience through this accident stuff had me not trusting anyone in the primary care department. For a week leading up to the appointment, I was a mess every time it came to mind. I had to continuously use my tools, reason things out with my closest support people, and stay in contact with my Higher Power. By the time the morning came, my nerves were wrecked! I pushed through anyways and rehearsed the Serenity Prayer many times leading up to me standing in front of their building. I took a deep breath and made my way in. Somehow, I stayed fully present through the check-in process and walked step by step to the second floor. I sat there for a moment unable to read or concentrate like I was used to in the past. This time I anxiously got up and paced between entry ways not knowing which direction they would be coming out from, until I settled in a spot that gave me a full view where no one could surprise me. Repeating the Serenity Prayer some more and focusing on my breathing. Inhale. Exhale. Repeat. Doing my best to keep my heart rate down. They finally called me back to the exam room, and somehow, through this I still managed to be present with each foot forward. They got my weight and vitals, then I sat down. I remember the gal helping me from prior interactions, she always gave me the vibe that she genuinely cares about what she does so I found myself uncontrollably blurting out “I don’t want to be here”. She responded with compassion and asked me questions, so I went on to explain to her some of my experiences that led to the outburst, and she reassured me, gave me helpful advice, and offered me empathy. I appreciated her response to my reaction. She finally left and told me the doctor would be in shortly. I honestly don’t recall how long it took, but it seemed like he was there pretty quickly. I never did see his face since he had a mask on, but I know in my heart that I will always remember him as the person who saw me. And I mean really saw me. He started with an introduction and pleasantries, and quickly announced that he reviewed my chart and then asked me for a picture of what’s going on. I went on to explain to him the surgical history, the important details about the accident, and my physical symptoms (I don’t need to share more about those), that he needed to know to feel good about processing my request for pelvic floor therapy.

“You get in life what you have the courage to ask for.”

– Oprah Winfrey

This doctor was great and truly handled my care with dignity and respect. He saw me as a person and honored everything I have been through since my accident. He validated my anxiety and unease about being in that clinic and told me that I have every right to feel the way I do, and that my PTSD is very real. He verbalized how proud of me he was for getting myself off all the medications and he cleared my med list without pushing more meds on me. I don’t manage my symptoms with narcotics or muscle relaxers anymore; I use a wide array of alternative methods that do not compromise my personality or ability to be present. The list of things I do to help myself to stay healthy is extensive. He asked me some questions to see how much of my daily functioning has been impacted, and he encouraged me to put full effort into the pelvic floor therapy in hopes that I will see improvements. He shared with me the type of practices that may be offered and even shared a personal story of a loved one that regained function after participating in those practices. I felt reassured and hopeful. Then we got into how much of my cognitive functioning has been affected. I shared with him that my therapist was concerned about a TBI. He asked if I hit my head, I said “no”. Then he asked me to share some of the symptoms that lead to that concern. I went on to explain to him that relationships have changed, I don’t recognize familiar people, I forget names and events, I struggle with decision-making and problem solving, words are often hard to find, difficulty expressing thoughts or understanding others, unable to process information, getting overwhelmed easily, forgetting where I am, memory loss, unable to collect thoughts when too much is happening around me, just to name a few. He let me know that the amount of nerve damage I’ve experienced has affected my cognitive functioning and that he cannot guarantee I will get it back but encouraged me to keep doing what I’m doing. I found his approach to me very kind and felt that he met me where I was at by getting on my level. He took the time to understand me instead of just pushing his own will on me or treating me as less than. I am so grateful that I walked into that clinic with courage, and that I asked for what I needed. He helped me regain some hope and trust. Both medical staff I met with gave me the tools I need to get my complex needs met; a much better interaction than I have had in the past.

My journey of recovery and rehabilitation is a work in progress. I continue to find ways to adjust and improve my overall well-being. I find joy more often, that’s good. I have my good days and bad days, and just as I’ve said before, even my bad days mean something. I am blessed that I can walk without assistance. I have a whole community of people standing with me, that I am beyond grateful for. Life as I know it will never be the same, but it is a life worth living after all.

Amber T

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Back to Basics

5-6 min read

The last week has been the hardest since the surgery. I was beyond irritable, snapping at everything, and the anger was just building up. I knew something wasn’t right. I made the decision to take myself off of my pain meds. It was necessary. As soon as I was able to be more clear headed, I was hit with waves of grief. I spent two days in bed, trying to feel my feelings. There were lots of tears, and honestly, I’m still working through it all. It always amazes me how grief likes to sneak up when we are at our most vulnerable. Grief is something that I have come to embrace and process in healthy ways. It looks much different now in my life than it did for all the years before my recovery. It was so uncomfortable at first, I wanted nothing to do with it. It was scary, stressful, painful, sad. All things I didn’t want to feel. Nor did I have the tools or support to grieve in any healthy way. After knowing how to shove it down for so many years, being healthy about it was not something I knew anything about. I sure came to learn though how not grieving showed up in my life… through anger, irritability, depression, fear, overthinking, obsession, poor coping. I could go on. What matters now is that I have all the tools and support to help me identify when I’m not doing well and how to move through grief in ways that don’t affect my life in negative ways any longer. Learning about the different stages of grief was a big part of the process of learning to cope in a positive manner. Denial. Anger. Bargaining. Depression. Acceptance. And each of those stages has unique ways of working through them. Even after all these years, I still move through the stages of grief of things I thought I’d accepted, and I have to work through the process all over again. You see, grief is overwhelming sadness and a series of goodbyes. It comes in waves. Just when you think that you moved through something, there is a chance of being re-triggered and having to start the process all over again. As long as you are aware enough to come out of denial, you will be able to move through the next stages that much easier. And it truly does get easier each time. The recent days I was feeling irritable, I knew that I was feeling something that I wasn’t processing properly. Every little thing was making me angry and sensitive. By taking myself off of my pain meds, I gave myself the headspace to truly see what was going on. Grief. Grieving something I’ve worked on grieving for many years, and somehow every time I am vulnerable, it comes up again and I’m working through it all over again. Something will pop up and it’s back to step one… back to basics. That’s okay. I sure am grateful that I have the ability to pick myself up when I am back there again, because I’ve come to learn that it’s a normal part of the process of working through our emotions in healthy ways. And you know what? It’s okay to not be okay. As long as we don’t stay there. Grief is meant to visit. It’s what helps us grow. I for one, wouldn’t be who I am today if it wasn’t for the grief that I’ve experienced. Grief is proof that love existed and the loss of whatever it is, was painful because that love was there. By denying grief and not working through it properly, we deny love. We deny honoring what the love gave us. Why would we do that? It might be uncomfortable to truly feel grief, I get it. But by denying it, we are denying our true, raw, authentic feelings. So… for the next few days, I plan to take extra care of myself and really feel my feelings. Work through the grief. And honor what it is giving to me. I know it will fade again, as it always does. I also know that the grief will be back again, as it always is. And that’s okay. Because honoring grief, and truly letting it show up in my life, is proof that love existed. That’s something I need because there are more days that I have forgotten that, than there are days I remember it. Just for today, I will go back to basics, taking things one day at a time, accepting I am powerless, and using the tools I have been so blessed to receive.

God, grant me the serenity, to accept the things I cannot change. Courage to change the things I can. And wisdom to know the difference.

– Serenity Prayer

Though grief may not seem like it should be a part of my physical recovery, it plays a much bigger role than you’d think. For me to be intellectually, emotionally, and spiritually healthy, I have to work through it so that I can be strong enough to push through my physical healing. These are important parts of ourselves that need the most tender love and care. Otherwise, I know I risk remaining irritable, angry, and depressed, causing more harm to myself and others around me. If you are struggling with grief, reach out for help. Admit to yourself and someone else that you are struggling. We are not meant to go through grief on our own. Rely on your community, on your family and friends. Let them show up for you. And pray. The grief is worth honoring, no matter what stage or how long ago the loss happened. Grief knows no time limit. If you can practice the things I mentioned above, you will grow, heal, and find gratitude, and that’s a beautiful gift worth working toward.

Through my grief, I have found ways to express myself, self care, and to give back, to ensure I’m honoring everything I’ve received through the healing process and what I’ve learned along the way. I feel called to a higher purpose of sharing my experience, strength, and hope, to help others in their own journey of recovery. And in order for me to be successful in this, I must practice self care every day. An act many of us could do better in. To grieve and grow in healthy ways, we must learn and practice the art of self care. Because self care is the best care we can give ourselves, to help us be successful through the challenging process known as recovery.

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Small Chapter

3-4 min read

Well, I am three days Post-Op and am doing surprisingly well! Honestly, I feel better than I expected. I even feel better now than I did the first six months after the accident. I am feeling pretty optimistic. I have challenges of course, I just had surgery after all. My hip and leg are sore, tender, and weak, however, the pain I had pre-surgery is almost non-existent. That is really promising! It could be the meds I’m on, or it could be that the surgery was much more successful than I anticipated.  Time will tell. I’ve been able to get on the spin bike to keep my hip moving. I’m supposed to ride it twice a day. I started at two minutes and have to increase my time by one minute every other day. It’s not easy by any means, but it’s totally doable. I’m up to three minutes. This morning was difficult, but I took the queues that my body needed rest and that’s what I did. Here in a week, I’ll start physical therapy. That I think will be the hardest part of all of this for me. It was the hardest part after the accident. I have firsthand knowledge of what it will take, and I am prepared to put in the work. My support has been amazing. My mental health is in a good place. Overall, I am doing really well. The last year has prepared me for this part of my journey. Taking things slow and steady is what is helping me operate at my best. Slow and steady was my theme for 2022, so I got a lot of practice. I must say too, that all the time I spent on crutches after the accident, really helped me prepare for this. I am able to get around pretty good and I’m fully present. I’m slow and my hip/leg doesn’t move well, but I anticipate it won’t take long to get some of my mobility back. I feel truly blessed to have my lived experience and a strong supportive community, that help me through this time in my life. When I think back to the challenges I’ve had to face over the last 14 months since the accident, this seems like a small chapter of that story.

“Radical Acceptance is the willingness to experience ourselves and our life as it is. A moment of Radical Acceptance is a moment of genuine freedom.”

– Tara Brach, 2004

To be totally transparent, I expected this part of the journey to include way more tears and more moments of wanting to give up. I definitely wasn’t expecting to feel so good and being able to be as present as I have been. That’s not to say I won’t have my moments, but this is a great start to everything I have coming. I’m grateful to have much of my independence through this. I’ve had to set myself up with assisted devices and ask for a lot of help, so that I could maintain my independence. Especially as a single individual. Anyone going through something like this could attest to the fact that losing one’s independence is a hard part of these types of journey’s. I have so many doohickey’s at home to help me though. From a sock aid, toilet riser, body pillow, grabber, to furniture risers, leg lifter strap and shower chair. It’s the little things that make a huge difference in me being able to maintain good mental health. I think if I didn’t have that type of help, I’d be pretty upset and struggle much more. Of course, there are some things that I just have to accept are on hold and will come in time. That’s okay. I’ve been working on acceptance for some time now. It just gets easier and easier with each opportunity. I’m glad I was able to find the space to give an update. Writing is such a helpful way for me to express myself and to work through what I’m going through. Not to mention the opportunity for reflection. I’ll work to give another update within a week or so, especially to check in when the physical therapy starts. In the meantime, I will focus on my healing and my physical recovery, and in this moment, it’s nap time! Stay tuned everyone. More to come!

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Fear Without Judgement

6-8 min read

With everything going on, I figured giving an update on my medical stuff would help me feel better and give others perspective about what’s going on in my life. This has been many months in the making and it’s been over a year since the car accident. As of this last week, I am officially scheduled to have surgery on my hip in just two short weeks. My Orthopedic Surgeon will be performing Hip Arthroscopy surgery, while also repairing my labral tear. Basically, she is reshaping the femoral head by shaving it down to remove bone that is causing an impingement, and will also be repairing the labrum, so that my joint will sit in the socket properly. Depending on how the surgery goes and what it looks like, there is a chance that they will need to perform micro-drilling as well (where they create little mini fractures to help increase blood flow to stimulate cartilage growth if needed), but I just won’t know until I come out of surgery if it was performed or not. That will depend on the condition of my joint when they get in there; as of now, I do have fluid buildup in my bone marrow, indicating my bone is not getting enough blood flow, which has caused further damage. It definitely hasn’t helped my ability to heal. My recovery is expected to look like 6-8 weeks on crutches. The micro-drilling happening or not will determine if it’ll be 2 or 8 weeks non-weightbearing. Directly after the surgery, they will perform Radiation Therapy on my hip (don’t worry, I won’t feel a thing, it’s low-risk & very effective) to help prevent excessive bone growth and over healing, then I will go home that night. By the time I get home that night, I will get on a spin cycle… twice a day for the duration of my recovery (the goal is to keep it up permanently), gradually increasing my time on the bike. I will also engage in a very strict 18-page Physical Therapy regimen over that timeframe. It’s intensive. It’ll help get me where I need to be though, to hopefully walk unassisted again. That is the hope. There is also a 50% chance that we will need to do the same thing on the other side, but we won’t know until after the full recovery time has passed for this initial surgery. I’ve also been continuously warned that there is damage to my nerves coming out of the base of my spinal cord, however I am already seeing improvement through my meditation and lifestyle changes, which is super positive. I am hopeful that will continue to improve as I grow in my practices and as I heal physically. Oh, how I look forward to doing yoga again! Every part of me needs yoga. I also plan to continue to maintain good self-care and include things like massage, acupuncture, float tanks and other practices, that require being present and mindful. This journey will be far from easy, but I am glad to share that I have been eating a healthy (and delicious) diet, specifically designed to help keep inflammation down, that should be maintainable through this process. I have support to call or video chat with. I have support that will come over. I have support that is willing to help pick up groceries, meal prep with me, pick me up and take me to go bake cookies, people to pray with, support groups I can attend virtually, support that will be there for me in many ways, so that I can be successful. I am also blessed to be able to take the time off work, so that I can focus only on my physical recovery and maintaining good mental health. Though this may be a challenging journey, the view that comes after should be pretty amazing.

There are lots of things that I plan to focus on to help create distance from all the hard work I will be putting in. Things like forgiveness, humility, grace, trust, patience, understanding, and all of those wonderful things that continue to grow in my life. I plan to embrace those things by journaling, puzzling, coloring, crocheting, reading, listening to podcasts, and truly taking care of myself. I plan to be present in my recovery and in this journey. I plan to soak up everything that it offers me, so that I can maximize my growth and healing. There is always much more that happens behind the scenes than people see. My hope is to share my recovery in some way, whether it be through writing or something else. I’m hoping I will be in a good place to share. I do also know the reality is that there will be some haaaaaard moments/days through this that I may not want to share about or be in a place to. Those moments will be best left for my support people who are prepared to lift me up with faith, hope and trust, because that is what I will need. As of now, I am as prepared as I can be. I’ve asked for help where I need it and I have safety set up with my supports. I am really looking forward to how this experience helps grow my relationships and my faith. There are some things I have fear around, however I just keep handing those things over and using my tools to get through. Fear has a funny way of getting us off course, so I just acknowledge the fear and am open with my Higher Power about how I’m feeling. That really helps. I always feel tons lighter when I am open about my fear. Even when it seems ridiculous. Part of the journey of fear is trust. That can be challenging to navigate for someone like me with trust issues. Sure makes me grateful for my program, my community and the foundation I have built. Makes growing through things much less challenging. Being able to reason things out with another person and put fear in words without judgement, shame or someone trying to fix it, makes a big difference in feeling good about being open and honest about fears, that’s for sure. I recognize not everyone is as fortunate as I am. It takes really building those relationships through boundaries, trust, understanding, patience, vulnerability and intention. If it wasn’t for having some solid relationships in my life, this surgery wouldn’t even be possible. This next step in my healing wouldn’t be possible. And I’m sure that there are many folks out there who do not get the same chance I do. I am truly blessed to have this opportunity to grow and heal, physically, intellectually, emotionally, and spiritually, so I must honor this amazing gift by jumping in with both feet and no fear. And just maybe, my journey might help someone in their journey. The best has yet to come.

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Unapologetically Me

Unapologetically Me

5-6 min read

It’s hard to know where to start when it’s been so long since I wrote last. I miss writing. The thing is, I’ve had to step way back and focus only on myself. It’s quite the challenge, but absolutely necessary. It’s meant that I have had to give up things I really enjoy. I’ve had to put dreams on hold. I’ve had to step away from relationships that don’t serve me. I’ve had to take a different path completely. I’ve also had to advocate for myself more than ever. I’ve had to work on forgiveness and acceptance. I’ve had to grow in ways I didn’t know I was capable of. Everything probably happened just the way it did so that I could be sitting right here and typing these exact words for you to read. It’s almost uncomfortable but then again, we grow when we are out of comfort zone.

For a little context, 9 months ago today, I had a car accident that turned my life upside down. It still manages to affect me today, in really big ways, but I have managed to get stronger and grow more each day. I don’t cry in pain anymore like I did… most days anyways. I’ve learned to adapt and work around the pain, so that I can continue to live my life and find any joy or serenity. Some days I don’t move and other days I move mountains. But even my days in bed mean something. Those are the days I am recouping my strength to keep on my journey. Some days I amaze myself that I have managed the way I have. I couldn’t have done it without my supportive community, that’s for sure. I am truly grateful for the support and proud of myself for how I have handled everything. Of course, I know this journey is far from over. There will be a lifetime of learning and growth. Afterall, I am an imperfect human being that has much to learn. I am filled with so much gratitude, I sometimes get overwhelmed that I don’t have enough physical energy to express it. The pain I’m in every waking moment, takes everything I have to give. It drains me often. I’ve been in survival mode now for a long time. I am tired. I’ve been tired. Truth is that my recovery saved me…. And continues to save me. If this would have happened 5-10 years ago, I probably would have ended my life. Then again… there have still been some days the thought has crossed my mind. Not as often anymore, but over the last 9 months, it still happened more times than I can count on both hands. A person in excruciating pain like this every day, can’t live a positive or healthy life without a large village of supporters. So, I’ve had to completely expose myself and allow others to pick up where I am not able. Talk about uncomfortable. I have been helped in more ways than I can express… and yet, there were literally still days it wasn’t enough. Giving things up just to have the mental capacity to survive, was all I could do. And there were days when something would take me off guard, or I wasn’t ready for, or were emotionally heavy, or even multiple things at once coming at me, and then it just made me mush. Almost as if I were incapable of functioning. I would literally beg and pray for any relief at that point. Eventually I gave up everything and said “Okay Higher Power, I’m listening…” and was led to where I am today. After that point, every step of the way I have consulted with my Higher Power. I have handed things over, kicking and screaming sometimes, and somehow everything turns out better than okay. And even though there is still quite a ways to go in my physical recovery, I know that my recovery journey is right on track.

The man who moves a mountain begins by carrying away small stones.

– Confucius

There are still many opportunities for me to work through forgiveness, acceptance, understanding and much more. All I can do is take things One Step At A Time and keep working my recovery. If I go any faster, I will fall backwards. Honestly, this time down with a physical ailment, is a true blessing. I’m sure I would have been much more resistant otherwise. Amazing how things work out the way they do. Now I am mostly stable. I get through each day with my pain. Some days are hard, but I have lots of support and tools to help me through. And… the doctors finally have a plan to help! That part was hard, and likely an area I need to work on forgiveness. Being told repeatedly that the pain is in your head or that it’s only a flare-up is super frustrating. It took everything I had to advocate for myself this whole time. To finally be heard. And to be kind through the process. There is no way someone feels this much pain 24 hours a day and it’s just nothing. I’m glad I was resilient and stood my ground. I’m glad I kept refusing to take no for an answer. Now that I know what’s wrong, there is some relief. I can carve out the time I need to give my body rest. There is anxiety too. Surgery feels like a big deal. Not to mention, my life is not really set up for surgery. It’s not something I even considered really, because for so long I was told something else. But there is so much hope! Hope for recovery. Hope for pain-free days to come. Hope for putting this hardship behind me. I may have to set aside my business, school, friendships, you name it… but in the end, I will be stronger and more capable when it comes time to pick up where I left off. And maybe most wouldn’t understand what I’m going through but it’s pretty incredible that this hardship… this journey… has given me the practice and strength to be unapologetically me. That sure counts for something.

Amber T