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Life As I Know It

6-7 min read

Over the last couple of months, I have finally had the capacity to do some reflection on everything that has occurred over the last two years. I have been taking much needed time to heal and recover Physically, Intellectually, Emotionally, and Spiritually. What a journey it’s been. It’s brought up many feelings and lots of questions. Some of the things that stand out to me are pain, sadness, grief, resilience, forgiveness, serenity, gratitude, and joy. I don’t think I’ll be able to put it into words in a way that can give it justice. What I can do, is share with you pieces of the journey that might offer some clarity. The thing that comes to mind first is to share my most recent doctor’s appointment and some of the challenges I’m still having. Before even going into the doctor’s office, I pretty much begged the doctor’s medical team to have the doctor review my medical history before meeting with me, with the emphasis that I want to rebuild trust to continue my care. My anxiety about that appointment was through the roof, but my therapist had assigned this task as homework for me to do before our next session and I knew it needed to be done. I had reservations though. I didn’t want to be treated the way I had in the past. I wanted them to take my request seriously. I just wanted an opportunity to further my healing. I didn’t want to go in there with my dukes up, but my lived experience through this accident stuff had me not trusting anyone in the primary care department. For a week leading up to the appointment, I was a mess every time it came to mind. I had to continuously use my tools, reason things out with my closest support people, and stay in contact with my Higher Power. By the time the morning came, my nerves were wrecked! I pushed through anyways and rehearsed the Serenity Prayer many times leading up to me standing in front of their building. I took a deep breath and made my way in. Somehow, I stayed fully present through the check-in process and walked step by step to the second floor. I sat there for a moment unable to read or concentrate like I was used to in the past. This time I anxiously got up and paced between entry ways not knowing which direction they would be coming out from, until I settled in a spot that gave me a full view where no one could surprise me. Repeating the Serenity Prayer some more and focusing on my breathing. Inhale. Exhale. Repeat. Doing my best to keep my heart rate down. They finally called me back to the exam room, and somehow, through this I still managed to be present with each foot forward. They got my weight and vitals, then I sat down. I remember the gal helping me from prior interactions, she always gave me the vibe that she genuinely cares about what she does so I found myself uncontrollably blurting out “I don’t want to be here”. She responded with compassion and asked me questions, so I went on to explain to her some of my experiences that led to the outburst, and she reassured me, gave me helpful advice, and offered me empathy. I appreciated her response to my reaction. She finally left and told me the doctor would be in shortly. I honestly don’t recall how long it took, but it seemed like he was there pretty quickly. I never did see his face since he had a mask on, but I know in my heart that I will always remember him as the person who saw me. And I mean really saw me. He started with an introduction and pleasantries, and quickly announced that he reviewed my chart and then asked me for a picture of what’s going on. I went on to explain to him the surgical history, the important details about the accident, and my physical symptoms (I don’t need to share more about those), that he needed to know to feel good about processing my request for pelvic floor therapy.

“You get in life what you have the courage to ask for.”

– Oprah Winfrey

This doctor was great and truly handled my care with dignity and respect. He saw me as a person and honored everything I have been through since my accident. He validated my anxiety and unease about being in that clinic and told me that I have every right to feel the way I do, and that my PTSD is very real. He verbalized how proud of me he was for getting myself off all the medications and he cleared my med list without pushing more meds on me. I don’t manage my symptoms with narcotics or muscle relaxers anymore; I use a wide array of alternative methods that do not compromise my personality or ability to be present. The list of things I do to help myself to stay healthy is extensive. He asked me some questions to see how much of my daily functioning has been impacted, and he encouraged me to put full effort into the pelvic floor therapy in hopes that I will see improvements. He shared with me the type of practices that may be offered and even shared a personal story of a loved one that regained function after participating in those practices. I felt reassured and hopeful. Then we got into how much of my cognitive functioning has been affected. I shared with him that my therapist was concerned about a TBI. He asked if I hit my head, I said “no”. Then he asked me to share some of the symptoms that lead to that concern. I went on to explain to him that relationships have changed, I don’t recognize familiar people, I forget names and events, I struggle with decision-making and problem solving, words are often hard to find, difficulty expressing thoughts or understanding others, unable to process information, getting overwhelmed easily, forgetting where I am, memory loss, unable to collect thoughts when too much is happening around me, just to name a few. He let me know that the amount of nerve damage I’ve experienced has affected my cognitive functioning and that he cannot guarantee I will get it back but encouraged me to keep doing what I’m doing. I found his approach to me very kind and felt that he met me where I was at by getting on my level. He took the time to understand me instead of just pushing his own will on me or treating me as less than. I am so grateful that I walked into that clinic with courage, and that I asked for what I needed. He helped me regain some hope and trust. Both medical staff I met with gave me the tools I need to get my complex needs met; a much better interaction than I have had in the past.

My journey of recovery and rehabilitation is a work in progress. I continue to find ways to adjust and improve my overall well-being. I find joy more often, that’s good. I have my good days and bad days, and just as I’ve said before, even my bad days mean something. I am blessed that I can walk without assistance. I have a whole community of people standing with me, that I am beyond grateful for. Life as I know it will never be the same, but it is a life worth living after all.

Amber T

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Five Seconds of Courage

Five Seconds of Courage

4-5 min read

Fear and anxiety can at times be crippling. But where do we begin when fear and anxiety have hit that point? Over the years I have gained many tools and support that help me during those times. Most of the time before they become crippling, but not always. Recently I had something come up for me that was emotionally and spiritually important to me, and that fear started to take over. It was a lot of work to continuously overcome those negative thoughts and not let it drive my behaviors. Afterall, fear is False Evidence Appearing Real. Thankfully with the help of my tools and support, it never did hit me in a crippling way. I knew I would regret not listening to my heart so I put in a lot of hard work to ensure that didn’t happen. And I am beyond grateful that I put in the work to take care of myself (over days mind you) and truly prepare myself to be my strongest self before finally having just five seconds of courage to push through my fear and anxiety. Because truth be told, that’s all it takes for us to take big leaps. As many of you might know, fear and anxiety can prevent us from ever getting to the point of having those five seconds of courage. And that’s okay. It’ll be more fulfilling if you put in the work to behave in healthy ways versus reacting out of emotions. For myself, with this particular emotional and spiritual important thing to me (it was an amends to someone), it required that I took time to reflect on my emotions, reflect of my motives, reflect on whether I had any expectations, reflect on whether I am healthy enough in my recovery, reflect on the past, reflect on whether there might be harm done, you name it. There was a lot of work I put in to ensure that I was doing the right thing. During the process, there were many fearful and anxious thoughts that would try to take over. Instead of letting those thoughts live in my head, I handed them over and would say the Serenity Prayer, have a conversation with my Higher Power or a trusted friend, write it out, and truly take care of myself. I gave myself time to understand my fear. I gave myself time to understand my anxiety. And what it came down to was that it was important to me. It makes total sense that through the process I got worked up about possible outcomes. I also know from experience that I could come up with a thousand different scenarios that might happen and not one of them would be correct. The next best thing was to accept that I was powerless over how another person responds to me or how they react. The only thing I have control over are my own actions and words, and it’s important to me that I honor my authentic self. I’ve learned over the years that if I work my recovery, use my tools and support, I have a better chance of coming out stronger and healthier. And let me tell you, that’s exactly what happened. Not only was the experience positive in really big ways, but I also came to really see (and feel) how far I have come over the years. Chasing recovery has a way of really paying off in unexpected ways. Of course, the process is scary and unknown, but trust me when I say, it is totally worth it.

“The best way out is always through.”

– Robert Frost

Recovery often feels like starting all over. Rediscovering who you really are, without hiding behind that one thing that has kept you from being your true, authentic self. To learn new behaviors and beliefs, while placing our problems in its true perspective, allows us an opportunity to grow and heal in really big ways. The longer I practice what I learn and reach out to my support, the more I can see the growth in my life, providing strong support in times of doubt, and bringing me great strength and courage I didn’t have before. I may have been skeptical at first, but I paid attention to what was happening around me, and in my life, bringing me perspective that helped me build trust in myself and in the process of recovery. Time somehow offers us insight and gives us an opportunity to be more informed, so if I can offer you anything, I offer you this… keep showing up to put in the work, giving yourself time to see how it shows up for you in your life. Same when it comes to using new tools… practice the tools for a short time before giving up on them for not working. Just as a new habit takes time to build, learning new behaviors and ways of coping deserves the same time to implement into your life. Give yourself lots of grace and remember that you are a beautifully pieced together masterpiece that came together through Progress, Not Perfection. For me, I look forward to seeing more about how my recovery helps me to keep taking the leap and finding that five seconds of courage it takes to change my life in unexpected (and beautiful) ways!

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Back to Basics

5-6 min read

The last week has been the hardest since the surgery. I was beyond irritable, snapping at everything, and the anger was just building up. I knew something wasn’t right. I made the decision to take myself off of my pain meds. It was necessary. As soon as I was able to be more clear headed, I was hit with waves of grief. I spent two days in bed, trying to feel my feelings. There were lots of tears, and honestly, I’m still working through it all. It always amazes me how grief likes to sneak up when we are at our most vulnerable. Grief is something that I have come to embrace and process in healthy ways. It looks much different now in my life than it did for all the years before my recovery. It was so uncomfortable at first, I wanted nothing to do with it. It was scary, stressful, painful, sad. All things I didn’t want to feel. Nor did I have the tools or support to grieve in any healthy way. After knowing how to shove it down for so many years, being healthy about it was not something I knew anything about. I sure came to learn though how not grieving showed up in my life… through anger, irritability, depression, fear, overthinking, obsession, poor coping. I could go on. What matters now is that I have all the tools and support to help me identify when I’m not doing well and how to move through grief in ways that don’t affect my life in negative ways any longer. Learning about the different stages of grief was a big part of the process of learning to cope in a positive manner. Denial. Anger. Bargaining. Depression. Acceptance. And each of those stages has unique ways of working through them. Even after all these years, I still move through the stages of grief of things I thought I’d accepted, and I have to work through the process all over again. You see, grief is overwhelming sadness and a series of goodbyes. It comes in waves. Just when you think that you moved through something, there is a chance of being re-triggered and having to start the process all over again. As long as you are aware enough to come out of denial, you will be able to move through the next stages that much easier. And it truly does get easier each time. The recent days I was feeling irritable, I knew that I was feeling something that I wasn’t processing properly. Every little thing was making me angry and sensitive. By taking myself off of my pain meds, I gave myself the headspace to truly see what was going on. Grief. Grieving something I’ve worked on grieving for many years, and somehow every time I am vulnerable, it comes up again and I’m working through it all over again. Something will pop up and it’s back to step one… back to basics. That’s okay. I sure am grateful that I have the ability to pick myself up when I am back there again, because I’ve come to learn that it’s a normal part of the process of working through our emotions in healthy ways. And you know what? It’s okay to not be okay. As long as we don’t stay there. Grief is meant to visit. It’s what helps us grow. I for one, wouldn’t be who I am today if it wasn’t for the grief that I’ve experienced. Grief is proof that love existed and the loss of whatever it is, was painful because that love was there. By denying grief and not working through it properly, we deny love. We deny honoring what the love gave us. Why would we do that? It might be uncomfortable to truly feel grief, I get it. But by denying it, we are denying our true, raw, authentic feelings. So… for the next few days, I plan to take extra care of myself and really feel my feelings. Work through the grief. And honor what it is giving to me. I know it will fade again, as it always does. I also know that the grief will be back again, as it always is. And that’s okay. Because honoring grief, and truly letting it show up in my life, is proof that love existed. That’s something I need because there are more days that I have forgotten that, than there are days I remember it. Just for today, I will go back to basics, taking things one day at a time, accepting I am powerless, and using the tools I have been so blessed to receive.

God, grant me the serenity, to accept the things I cannot change. Courage to change the things I can. And wisdom to know the difference.

– Serenity Prayer

Though grief may not seem like it should be a part of my physical recovery, it plays a much bigger role than you’d think. For me to be intellectually, emotionally, and spiritually healthy, I have to work through it so that I can be strong enough to push through my physical healing. These are important parts of ourselves that need the most tender love and care. Otherwise, I know I risk remaining irritable, angry, and depressed, causing more harm to myself and others around me. If you are struggling with grief, reach out for help. Admit to yourself and someone else that you are struggling. We are not meant to go through grief on our own. Rely on your community, on your family and friends. Let them show up for you. And pray. The grief is worth honoring, no matter what stage or how long ago the loss happened. Grief knows no time limit. If you can practice the things I mentioned above, you will grow, heal, and find gratitude, and that’s a beautiful gift worth working toward.

Through my grief, I have found ways to express myself, self care, and to give back, to ensure I’m honoring everything I’ve received through the healing process and what I’ve learned along the way. I feel called to a higher purpose of sharing my experience, strength, and hope, to help others in their own journey of recovery. And in order for me to be successful in this, I must practice self care every day. An act many of us could do better in. To grieve and grow in healthy ways, we must learn and practice the art of self care. Because self care is the best care we can give ourselves, to help us be successful through the challenging process known as recovery.