6-7 min read
Over the last couple of months, I have finally had the capacity to do some reflection on everything that has occurred over the last two years. I have been taking much needed time to heal and recover Physically, Intellectually, Emotionally, and Spiritually. What a journey it’s been. It’s brought up many feelings and lots of questions. Some of the things that stand out to me are pain, sadness, grief, resilience, forgiveness, serenity, gratitude, and joy. I don’t think I’ll be able to put it into words in a way that can give it justice. What I can do, is share with you pieces of the journey that might offer some clarity. The thing that comes to mind first is to share my most recent doctor’s appointment and some of the challenges I’m still having. Before even going into the doctor’s office, I pretty much begged the doctor’s medical team to have the doctor review my medical history before meeting with me, with the emphasis that I want to rebuild trust to continue my care. My anxiety about that appointment was through the roof, but my therapist had assigned this task as homework for me to do before our next session and I knew it needed to be done. I had reservations though. I didn’t want to be treated the way I had in the past. I wanted them to take my request seriously. I just wanted an opportunity to further my healing. I didn’t want to go in there with my dukes up, but my lived experience through this accident stuff had me not trusting anyone in the primary care department. For a week leading up to the appointment, I was a mess every time it came to mind. I had to continuously use my tools, reason things out with my closest support people, and stay in contact with my Higher Power. By the time the morning came, my nerves were wrecked! I pushed through anyways and rehearsed the Serenity Prayer many times leading up to me standing in front of their building. I took a deep breath and made my way in. Somehow, I stayed fully present through the check-in process and walked step by step to the second floor. I sat there for a moment unable to read or concentrate like I was used to in the past. This time I anxiously got up and paced between entry ways not knowing which direction they would be coming out from, until I settled in a spot that gave me a full view where no one could surprise me. Repeating the Serenity Prayer some more and focusing on my breathing. Inhale. Exhale. Repeat. Doing my best to keep my heart rate down. They finally called me back to the exam room, and somehow, through this I still managed to be present with each foot forward. They got my weight and vitals, then I sat down. I remember the gal helping me from prior interactions, she always gave me the vibe that she genuinely cares about what she does so I found myself uncontrollably blurting out “I don’t want to be here”. She responded with compassion and asked me questions, so I went on to explain to her some of my experiences that led to the outburst, and she reassured me, gave me helpful advice, and offered me empathy. I appreciated her response to my reaction. She finally left and told me the doctor would be in shortly. I honestly don’t recall how long it took, but it seemed like he was there pretty quickly. I never did see his face since he had a mask on, but I know in my heart that I will always remember him as the person who saw me. And I mean really saw me. He started with an introduction and pleasantries, and quickly announced that he reviewed my chart and then asked me for a picture of what’s going on. I went on to explain to him the surgical history, the important details about the accident, and my physical symptoms (I don’t need to share more about those), that he needed to know to feel good about processing my request for pelvic floor therapy.
“You get in life what you have the courage to ask for.”
– Oprah Winfrey
This doctor was great and truly handled my care with dignity and respect. He saw me as a person and honored everything I have been through since my accident. He validated my anxiety and unease about being in that clinic and told me that I have every right to feel the way I do, and that my PTSD is very real. He verbalized how proud of me he was for getting myself off all the medications and he cleared my med list without pushing more meds on me. I don’t manage my symptoms with narcotics or muscle relaxers anymore; I use a wide array of alternative methods that do not compromise my personality or ability to be present. The list of things I do to help myself to stay healthy is extensive. He asked me some questions to see how much of my daily functioning has been impacted, and he encouraged me to put full effort into the pelvic floor therapy in hopes that I will see improvements. He shared with me the type of practices that may be offered and even shared a personal story of a loved one that regained function after participating in those practices. I felt reassured and hopeful. Then we got into how much of my cognitive functioning has been affected. I shared with him that my therapist was concerned about a TBI. He asked if I hit my head, I said “no”. Then he asked me to share some of the symptoms that lead to that concern. I went on to explain to him that relationships have changed, I don’t recognize familiar people, I forget names and events, I struggle with decision-making and problem solving, words are often hard to find, difficulty expressing thoughts or understanding others, unable to process information, getting overwhelmed easily, forgetting where I am, memory loss, unable to collect thoughts when too much is happening around me, just to name a few. He let me know that the amount of nerve damage I’ve experienced has affected my cognitive functioning and that he cannot guarantee I will get it back but encouraged me to keep doing what I’m doing. I found his approach to me very kind and felt that he met me where I was at by getting on my level. He took the time to understand me instead of just pushing his own will on me or treating me as less than. I am so grateful that I walked into that clinic with courage, and that I asked for what I needed. He helped me regain some hope and trust. Both medical staff I met with gave me the tools I need to get my complex needs met; a much better interaction than I have had in the past.
My journey of recovery and rehabilitation is a work in progress. I continue to find ways to adjust and improve my overall well-being. I find joy more often, that’s good. I have my good days and bad days, and just as I’ve said before, even my bad days mean something. I am blessed that I can walk without assistance. I have a whole community of people standing with me, that I am beyond grateful for. Life as I know it will never be the same, but it is a life worth living after all.
Amber T
